Over 50% of Crohnees Claim To Have Had Surgery…

Recently, we conducted a survey of nearly 1,000 of our CrohnsHelp.com subscribers and had a little over 130 respondents. The survey’s purpose was to learn more about the severity and general patterns of Crohn’s disease in the Crohn’s community.

Please note that this study is not complete and that there are many variables that go into play. However, some of the findings are very interesting.

Summation of Research

Some of the interesting findings (find all results below):

1. Over 45% said to have been to the hospital more than 4 times because of Crohn’s Disease.

2. Over 37% said that they have more than 4 flare-up attacks a year.

3. Over 50% said to have had surgery because of Crohn’s Disease.

Below are the exact questions we asked and our results:

Question 1: How severe is you Crohn’s Disease?

1. Light -  18.94%
2. Intermediate    - 56.06%
3. Severe - 25.00%

Question 2:  How many times have you been to the hospital because of your Crohn’s Disease? 

1. 1 - 23.02%
2. 2 - 19.84%
3. 3 - 11.90%
4. 4+ - 45.24%

Question 3:  How many flare up attacks do you have every year?

1. Once - 18.90%
2. Twice - 22.05%
3. Three - 17,32%
4. Four - 3.94%
5. More than four - 37.80%

Question 4:  Which of the following symptoms do you have?

1. Pain - 18.42%
2. Weight Loss - 11.02%
3. Blood - 9.87%
4. Diarrhea - 17.93%
5. Weakness - 15.95%
6. Gas - 13.98%
7. Joint Pain - 12.83%

Question 5:  Have you ever had surgery because of Crohn’s Disease?

1. Yes - 50.77%
2. No - 49.23%

Question 6:  have you ever had or have an iliostomy or colostomy bag?

1. Yes - 14.39%
2. No - 85.61%

Disclaimer:

Please note that those who join The Crohn’s Disease newsletter are already prone to have a more serious occurrence of the disease given that they are actively researching more information. Also, our respondent pool, although global and well representing, was fairly small (130+ respondents versus an estimated over 500,000 cases in U.S. alone).

This survey was not conducted according to any official guidelines – it was simply a survey our own newsletter. The results are meant only to help provide some information, but not to be taken as official research.

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21 July 2006 | Crohn's Disease, Crohn's Research | Comments